Championing inclusivity and care for people living with albinism 14 September 2025

Department of Health 2025/09/15 - 22:00



​The Gauteng Department of Health (GDoH) continues to lead the way in promoting inclusive healthcare by offering dedicated support to individuals living with albinism. From access to prescription glasses and high-SPF sunscreen to rehabilitation services, the Department's initiatives are helping to address the unique health challenges faced by this community.

The year 2025 marks a significant milestone, 10 years since the launch of International Albinism Awareness Day (IAAD). Under the global theme "10 Years of IAAD: A Decade of Collective Progress", the GDoH partnered with the Albinism Society of South Africa to commemorate Albinism Month at Sibonile School for the Visually Impaired.

The event, themed "Celebrating the Beauty of Albinism", was led by Gauteng MEC for Health and Wellness, Nomantu Nkomo-Ralehoko, and attended by senior officials from the Gauteng Department of Education. This collaboration underscored a shared commitment to supporting individuals with albinism.

Albinism is a rare genetic condition caused by a lack of melanin, the pigment responsible for skin, hair, and eye colour. It affects people of all races and ethnicities, including Black communities. Globally, oculocutaneous albinism (OCA) affects approximately 1 in 20 000 people, while ocular albinism (OA) affects at least 1 in 60 000 males.

Individuals with albinism often face vision problems, sensitivity to light, and social stigma. 

Many struggle to access essential resources such as sunscreen and lip balm, increasing their risk of skin cancer and other health complications. To protect their skin and eyes, experts recommend wearing sunglasses, using SPF 20+ sunscreen and SPF 25+ lip balm, avoiding direct sunlight between 11h00 and 13h00, and wearing protective clothing such as long-sleeved cotton shirts and wide-brimmed hats.

The MEC emphasised that the GDoH remains committed to supporting people with albinism. This includes providing prescription glasses, spectacles, SPF 40 and 50 sunscreen, and rehabilitation services. These interventions are vital for addressing vision challenges and protecting sensitive skin from sun damage, which can lead to serious health risks such as skin cancer.

As part of the Integrated School Health Programme, the Department used the event to deliver comprehensive health services. Learners received HPV and Tdap vaccinations, TB screenings, nutritional and mental health assessments, and visual screenings. Sunscreen and dignity packs were also distributed to learners.

"As we celebrate the beauty of albinism, we also reaffirm our commitment to inclusivity. We are dedicated to improving the quality of life for persons with albinism, especially our children. We recognise the need for access to dermatological and vision care, health education, and ongoing support," said MEC Nkomo-Ralehoko.

The event served not only as a celebration but also as a platform to educate communities, raise awareness, and foster a more supportive and understanding environment for individuals with albinism.


RELATED NEWS

No related news